Ethics Rapporteur Programme
The Ethics Rapporteurs are vital to the ethics governance of the Human Brain Project. Together, they identify, address and provide an overview of emerging social and ethical questions raised by research in the Project.
The Ethics Rapporteur Programme is contributing to an overall uptake of principles and practices of responsible research and innovation (RRI) across the HBP. The Ethics Rapporteurs have monthly meetings and communicate regularly with the Ethics Advisory Board members and the HBP Ethics Coordination team. Joint meetings between the three bodies are held periodically.
The Ethics Rapporteur Programme and its Work Package and Ethics Advisory Board participants identify and discuss emergent ethical and social questions that arise from scientific or other activities of the HBP. Those questions are systematised periodically in the so-called "One-pager Compilation Report on Ethical Issues", which gives an ongoing high-level overview of the ethics and social-related questions of the HBP. Participants may choose to register ethical, regulatory, or social issues in the Point of Registration (PORE), ensuring the issues can be followed through to a result or disposition.
Ethics Rapporteurs
Academics, scientists, technologists and administrators in senior and junior positions across the HBP, each with their unique skillset, take on the role of Ethics Rapporteur.
Ethics Rapporteurs Programme Lead
Centre for Research Ethics & Bioethics, Uppsala University
manuel.guerrero@crb.uu.se
Ethics Rapporteurs for WP1
University of Edinburgh
douglas.armstrong@ed.ac.uk
Institut NeuroPSI, CNRS Université Paris-Saclay Gif-Sur-Yvette
mallory.carlu@cnrs.fr
Institut NeuroPSI, CNRS Université Paris-Saclay Gif-Sur-Yvette
damien.depannemaecker@cnrs.fr
Ethics Rapporteurs for WP2
Centre for Research Ethics & Bioethics, Uppsala University
michele.farisco@crb.uu.se
GIGA Consciousness - University of Liège
jitka.annen@uliege.be
Institut d’Investigacions Biomèdiques August Pi i Sunyer
pkcarvajal@clinic.cat
Theofanis Panagiotaropoulos
Cognitive Neuroimaging Unit, CEA, INSERM
theofanis.panagiotaropoulos@cea.fr
KU Leuven
wim.vanduffel@med.kuleuven.be
Ethics Rapporteurs for WP4
Birgit Schauffhauser
Centre Hospitalier Vaudois
Birgit.Schaffhauser@chuv.ch
Samira Najih Besson
Centre Hospitalier Vaudois
Samira.Najih-Besson@chuv.ch
Ethics Rapporteurs for WP6
Jülich Supercomputing Centre, Forschungszentrum Jülich
m.frings@fz-juelich.de
Jülich Supercomputing Centre, Forschungszentrum Jülich
b.orth@fz-juelich.de
University of Manchester
Andrew.Rowley@manchester.ac.uk
Ethics Rapporteurs for WP7
Ethics Rapporteurs for WP8
Bárbara Gasset
Universidad Politécnica de Madrid
barbara.gasset@upm.es
Judith Kathrein
Medizinische Universität Innsbruck
judith.kathrein@i-med.ac.at
Anyone can request to address ethical, regulatory and social issues raised by HBP research.
Register an Ethical ConcernMore Ethics & RRI
The Human Brain Project will have an impact on both science and society.
We promote RRI practices within the HBP, and help to shape the direction of its research in ethically sound ways that serve the public interest.
