Given the scope and categories of data processed in the Human Brain Project, we have appointed a Data Protection Officer and produced several resources to support compliance.
Data Protection Officer
The General Data Protection Regulation (GDPR) requires the designation of a Data Protection Officer (DPO) in some circumstances. Given the scope and categories of personal data processed in the HBP, the Project has appointed a DPO.
The DPO is a professional in the field of data protection and works with HBP Partners to facilitate compliance with the GDPR. The role of DPO includes consultation on data processing activities and providing advice and recommendations on compliance with applicable laws. In particular, the DPO assists in carrying out data protection impact assessments (DPIA), among other compliance tasks.
In addition to data protection compliance, the DPO has a communication function and consults with data subjects, HBP Partners and leadership, and supervisory authorities. The DPO is also a part of the Data Governance Working Group.
HBP & EU Resources
Utilise the resources we have developed & collected that are helpful for data protection in the Human Brain Project.
We coordinate the management of ethical issues across the Human Brain Project. This includes the interaction with the European Commission and its ethics reviewers for ethics checks, ethics reviews, or ethics audits, as well as coordinating all work on ethics across all Work Packages in the Project. The task also includes the ethics rapporteur programme, and communications activities to promote responsible research and innovation in the Human Brain Project.
Anyone can request to address ethical, regulatory and social issues raised by HBP research.Register an Ethical Concern
Ethics & Society Training Resources
We have developed training resources that cover a wide range of issues in data governance, responsible research and innovation, and neuroethics.
Our training modules provide tools and methods for foresight, as well as critical and philosophical reflection.Introduction to Responsible Research & Innovation in HBP Human & Animal Data in EBRAINS Gender, Diversity & Inclusion Researcher Awareness & Integrity Dual Use of Concern & Misuse Knowledge Transfer & Commercialization Neuroethics, Consciousness & AI Ethics Foresight & Public Engagement Science Communication
More Ethics & RRI
The Human Brain Project will have an impact on both science and society.
We promote RRI practices within the HBP, and help to shape the direction of its research in ethically sound ways that serve the public interest.