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THE FUTURE OF MEDICAL DATA SHARING
IN CLINICAL NEUROSCIENCES

EAN-EBRAINS Joint Workshop


9–11 December 2021 | Hybrid Event

Download Preliminary Programme 2.3 MB

 

 

 


FAQs & all you need to know
 

Registration is free but mandatory and will be open until 25 November 2021. Attendance is open to anyone.
Please make sure to register with your institutional email address.

The link to our virtual conference platform as well as the online credentials will be sent out to all registered participants a few days prior to the event. 

To make this virtual event an interactive experience, it is important that you have access to a stable internet connection, good audio (with microphone) and ideally (not mandatory) a webcam for video communication.

Also, to have the full conference experience it is important that you have installed the Zoom Desktop Client application (v5.3.0 or higher) and that you access the conference platform via the latest version of Google Chrome

If you have any questions about the event, please contact us at workshop.edu@humanbrainproject.eu.

All times in the programme schedule are UTC+1/GMT+1= CET.

To prevent missed sessions, we recommend to use a time zone converter in advance. 


Find more about

EAN: https://www.ean.org/

MIP: https://ebrains.eu/service/medical-informatics-platform/

 

Data sharing stimulates science in all scientific disciplines, including the Clinical Neurosciences. Promotion of data sharing and the implementation of standardized harmonization rules among a global research community reduces the burden of unexploited research and plays a critical role in mitigating the problems of reduced sample sizes. Today, medical and research activities in clinical neuroscience produces a massive amount of data that could leverage our knowledge and understanding of brain diseases. Unfortunately, despite growing incentives for open data, most of it remains currently locked in hospitals or labs, either for regulatory or cultural reasons.

The Medical Informatics Platform (MIP) was developed in the framework of the Human Brain Project (HBP) as an innovative tool to investigate, compare and analyse large patient datasets distributed across centers without requiring the data to be transferred and stored outside their site of origin. The platform is integrated in EBRAINS, the sustainable European Research Infrastructure for brain-related research and legacy of the HBP.

Recently, the HBP has started a pilot project with the European Academy of Neurology (EAN) with the idea to use the MIP to promote clinical data sharing using a federated approach. EAN is the primary scientific and educational European organisation in the field of Clinical Neurosciences, including more than 45,000 members, as well as 47 European National Societies. EAN is committed to scientific progress and aims to keep Europe at the forefront of neurological research and to maintain its position as one of the world’s scientific hotpots in neurology.
 

CALL FOR REGISTRATIONS

The HBP and EBRAINS together with the EAN invite the entire scientific community to join the forthcoming workshop on the Future of Medical Data Sharing in Clinical Neurosciences. This event aims at exposing and openly discussing all issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. We propose a platform to disclose the preliminary results of these use-cases, four brainstorming sessions involving EAN Scientific Panels, demonstrations and a hands-on session, which will highlight important aspects and issues of medical data sharing and offer participants the possibility to understand how to use the MIP for their own applications.
 

REGISTRATION

Registration deadline: 25 November 2021
Registration is free but mandatory.
 

In addition to participating virtually, we offer a limited number of tickets to join the workshop on-site. Please check the programme below to see which parts of the workshops are being held on-site.


You can register to attend the on-site parts of the workshop via this link:https://www.eventbrite.at/e/registration-for-on-site-participation-ean-ebrains-workshop-tickets-178570207297


Important notes:

You need to have a valid ticket for virtual participation first in order to be eligible for registering for an on-site ticket.

Availability of seats for on-site participation is limited due to Covid-19 restrictions. In case the number of seats need to be reduced, participants will be invited on a first-come first-served basis. In such case you will be contacted by email.

- To attend the workshop in person, it is mandatory to show your COVID passport (or a comparable proof of vaccination, recovery or negative test, if you are coming from outside Switzerland) and an identity document upon entry.

 

 

PRELIMINARY PROGRAMME

*The HBP and the EAN Scientific Committee have co-developed this programme.

The time zone of the event is CET (UTC/GMT+1).

13:30


REGISTRATION

14:00


PLENARY SESSIONS:
(on-site & virtual)

14:00


Introduction
Thomas Berger | Medical University Vienna & Philippe Ryvlin Centre hospitalier universitaire vaudois

14:15


HBP: An overview
Katrin Amunts Forschungszentrum Jülich

14:45


EBRAINS: The future of HBP
Paweł Świeboda EBRAINS AISBL

15:15


EAN: Achievements and Ambitions
Paul Boon University of Ghent

15:45 COFFEE BREAK
16:15


EHDS: The future of data sharing in Europe
Maria-Iona Gligor European Comission - European Reference Networks and Digital Health

16:45


MIP: Why federating data in Medicine
Philippe Ryvlin Centre hospitalier universitaire vaudois

17:15


EAN: Why sharing data in clinical neurosciences
Thomas Berger Medical University Vienna

17:45 END OF SESSION

 

  PARALLEL SESSIONS
 
FEDERATION USE CASES
(on-site & virtual)

 
FEDERATION CHALLENGES
(virtual only)

 


Parallel session 1: Dementia
Chair: Jean-François Demonet | Université de Lausanne
 
Parallel session 2: Ethics
Chair: Bernd Stahl De Montfort University
08:30
The spectrum of data sharing in dementia
P.J. Visser | Amsterdam University Medical Centers
 

Re-use of clinical data for research
Michaela Th. Mayrhofer | BBMRI-ERIC

09:00


The MIP federation in dementia
Melanie Leroy | Université de Lille

How to make data public
Ida Aasebø | University of Oslo
09:30 EAN scientific panel on dementia
Kristian Steen Frederiksen | Danish Dementia Research Centre, Rigshospitalet Copenhagen University Hospital, Memory Disorders Research Unit

Ethics requirements for MIP usage
Erika Borcel | Centre hospitalier universitaire vaudois
 
10:00 COFFEE BREAK COFFEE BREAK
      Parallel session 3: Traumatic Brain Injury
Chair: Matthew Abrams Karolinska Institutet

Parallel session 4: Data safety
Chair: Oksana  IT University of Copenhagen
 
10:30


The international initiative for TBI research 
Hester Lingsma | Erasmus University Medical Center
 

The challenge of protecting hospital data
Frank Calcavecchia Hopitaux Universitaires de Genève
11:00
The MIP federation in TBI
Stefano Finazzi Mario Negri Institute for Pharmacological Research IRCCS
 

Data safety on EBRAINS
Stefano Gorini & Alex Upton CSCS
 

11:30
EAN scientific panel on neurotraumatology
Dafin Muresanu Foundation of the Society for the Study of Neuroprotection and Neuroplasticity (SSNN)
 

How to secure MIP networks across hospitals
Emrah Kavun Centre hospitalier universitaire vaudois
 

12:00 LUNCH BREAK LUNCH BREAK
  Parallel session 5: Stroke
Chair: Charlotte Cordonnier | Université de Lille

Parallel session 6: Data privacy
Chair: Jean Louis Raisaro École Polytechnique Fédérale de Lausanne
 
13:30
The impact of data sharing in stroke
Valeria Caso | University of Perugia
 
State-of-the art cryptography approach to data privacy
Barbara Carminati | Università degli studi dell'Insubria
13:55

The spectrum of national and European stroke registries
Georgios Tsivgoulis | National and Kapodistrian University of Athens


Risk-based data anonymization for medical research
Fabian Prasser | Charité Berlin
14:20 Why federating stroke registries
Maurizio Leone | IRCCS Casa Sollievo della Sofferenza

Differential privacy
Minos Garofalakis | Technical University of Crete
 
14:45 EAN scientific panel on stroke
Anna Bersano | Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta

The present and future model of MIP data privacy
Yannis Ioannidis | University of Athens, Athena Research Center
 
15:15 COFFEE BREAK COFFEE BREAK
  Parallel session 7: Epilepsy
Chair: Reetta Kalviainen | Kuopio University Hospital

Parallel session 8: Federated analytics
Chair: Yannis Ioannidis | University of Athens, Athena Research Center
 
15:45
Data sharing in epilepsy
Helen Cross | University College London
 
What is federated analysis
Yannis Ioannidis | University of Athens, Athena Research Center
16:15 The MIP federation in epilepsy
Philippe Ryvlin | Centre hospitalier universitaire vaudois

How to build and validate a federated algorithm
Jason Sakellariou University of Athens
 
16:45 EAN scientific panel on epilepsy
Tim von Oertzen | Kepler Universitätsklinikum


The MIP federated analytics
Giorgos Papanikos | National and Kapodistrian University of Athens
 

  Parallel session 9: Other/future use-cases
Chair: Paul Boon | University of Ghent

Parallel session 10: Ontologies and knowledge graph
Chair: Jan Bjaalie  | University of Oslo
 
17:15 Narcolepsy
Yves Dauvilliers | University of Montpellier

Ontologies for clinical neurosciences
Martin Hoffman-Apitius | University of Bonn/Fraunhofer-Institut für Algorithmen und Wissenschaftliches Rechnen SCAI
 
17:45
Neurorehabilitation
Letizia Leocani | IRCCS Ospedale San Raffaele
 
The power of EBRAINS Knowledge Graph
Jan Bjaalie  | University of Oslo
18:15 NeuroCOVID
Elena Moro | Grenoble Alpes University

Using knowledge graph in hospitals
Christophe Gaudet-Blavignac | University of Geneva
 
18:45 END OF SESSION END OF SESSION
PARALLEL SESSIONS
Brainstorming from EAN scientific panels on data sharing
- 90 min each parallel session
(virtual only)

(This session is upon invitation only)

MIP hands-on sessions
(virtual only)
9:00–10:30
Group 1
Chair: Mara Rocca | IRCCS Ospedale San Raffaele
 
09:00  MIP Installation Erica BorcelCentre hospitalier universitaire vaudois 

 

  • Administrative and technical steps towards MIP Installation


Neuroepidemiology
Ettore BeghiMario Negri Institute for Pharmacological Research

Neurocritical care
Serefnur Ozturk Selçuk University

Coma & chronic disorders of consciousness
Rita FormisanoFondazione Santa Lucia

Neuroimaging
Federica AgostaVita-Salute San Raffaele University / IRCCS Ospedale San Raffaele

Neurosonology
David SkoloudikUniversity of Ostrava

 


Group 2
Chair: Eavan McGovern Beaumont Hospital
 
09:20 Data preparation
Laith Abu-Nawwas Centre hospitalier universitaire vaudois
 
  • Delineating and implementing a data model in the MIP
  • Harmonizing a dataset according to the data model
  • Integrating anonymized data into the MIP


Child Neurology

Clinical Neurophysiology
Hatice TankisiAarhus University Hospital

Neurogenetics
Sylvia BoeschMedical University Innsbruck

Neuroophthalmology & -otology
Nese CelebisoyEge University

Pain
Martin RakusaUniversity Medical Centre Maribor

 

Group 3
Chair: Romana Höftberger Medical University Vienna
 
09:50 Extracting regional brain volumes from the MIP MRI pipeline
Laith Abu-Nawwas & Carolina Ciumas Centre hospitalier universitaire vaudois


Multiple Sclerosis & Neuroimmunology
Celia Oreja-Guevara Hospital Clínico San Carlos de Madrid

Muscle & NMJ disorders
Maria Judit Molnar Semmelweis University Medical School

Infectious diseases
Pille Taba University of Tartu

Neurooncology
Anette Storstein Haukeland University Hospital

Neuropathies
Christian Krarup University of Copenhagen

10:10

Data Analytics
Laith Abu-Nawwas Centre hospitalier universitaire vaudois
 

  • Data Governance principle
  • Current and new algorithms
 

Group 4 
Chair: Femke Bouwman Amsterdam University Medical Centers
 
10:30

Coffee Break

Higher cortical functions
Masud Husain University of Oxford

Autonomic nervous system disorders
Alessandra Fanciulli Medical University Innsbruck

Headache
Pablo Irimia Universidad de Navarra

ALS & frontotemporal dementia
Andrea Calvo University of Turin

Movement disorders
Angelo Antonini University of Padua

10:45

 

Dementia Use Case
Melanie Leroy Université de Lille

 

  • Selection of metadata and descriptive analyses
  • Developing a predictive model
  • Clustering analyses
10:30 COFFEE BREAK 11:15


TBI Use Case
Stefano Finazzi | Mario Negri Institute for Pharmacological Research IRCCS

 

  • Selection of metadata and descriptive analyses
  • Validation of prognostic models
     
10:45 Report of the four groups
Mara Rocca, Eavan McGovern, Romana Höftberger, Femke Bouwman
11:45 Concluding remarks
12:15 END OF THE MEETING

This programme is subject to change.

Download Preliminary Programme 2.3 MB

 

SCIENTIFIC CHAIRS

Prof. Philippe Ryvlin | Centre hospitalier universitaire Vaudois, Switzerland

Prof. Thomas Berger | Medical University Vienna, Austria


CONTACT

workshop.edu@humanbrainproject.eu

 

ORGANISED BY

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IN COOPERATION WITH

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VENUE

Centre hospitalier universitaire Vaudois
Grand Auditoire César Roux
46 Rue du Bugnon
1011 Lausanne
Switzerland