Information For Patients
R.E.: The Medical Informatics Platform
Medicine is producing an unprecedented level of valuable medical data at a gigantic pace around the world, with millions of brain images and terabytes of associated medical data every day. The Medical Informatics Platform (MIP) aims to create a virtual database that aggregates data from various sources, give them a common data model – this is called data federation. Data federation provides a single source of data for experts to analyze and advance understanding of neurological and psychiatric diseases. Analyses will lead to opening real possibilities for early diagnosis and personalized medicine, addressing one of the major healthcare challenges facing the EU. Data are not moved from hospital, not uploaded in the cloud, not copied and paste elsewhere, and that only anonymized data are being shared.
The MIP provides methods to analyze federated data from hospitals, research centers and biobanks. Clinical scientists can develop share and release results of their research. The MIP will bring together people across professional and scientific fields, encouraging them to contribute actively to the design and development of the services that the MIP provides. Representing fusion of medicine and computer science, we aim to break down the traditional barriers of patient care, brain science and clinical research to minimize the delays in diagnosis of brain diseases and institute the most effective treatments. Data security is a top priority for us. The MIP design will preserve hospital ownership and control of data by providing federated access to analysis tools across hospitals, without moving patient data from original servers and ensuring patient privacy.
Who Uses The MIP
We provide online evidence-based medicine tools via a web portal to users such as neuroscientists, computational scientists, epidemiologists, and the pharmaceutical industry. Its analyses integrate open-access research data repositories with brain disease features generated in participating hospitals using MIP tools.
Hospitals and research centers having installed the MIP:
- CHUV / Switzerland
- Brescia Hospital / Italy
- Plovdiv Hospital / Bulgaria
- CHRU Lille / France
- Niguarda Hospital / Italy
- Freiburg Hospital / Germany
- Institute Mario Negri / Italy
- IRCSS Neurological Institute Carlo Besta / Italy
- IRCSS Fondazione Istituto Neurologico Nazionale Casimiro Mondino / Italy
- St. Anne’s hospital / Czech Republic
- Motol university hospital / Czech Republic
- Danish epilepsy Filadelfia/ Denmark
- Hospital del Mar / Spain
- Sahlgrenska University Hospital /Sweden
- Grenoble Hospital / France
- IRCSS Don Carlo Gnocchi / Italy
- UKAachen / Germany
As in many IT contexts, data security is treated as a top priority, the need for which is made even more pressing due to the long-standing commitment of the medical profession to patient confidentiality. We aim to preserve hospital ownership and control of data by developing a federated query engine within the hospitals, leaving patient data in its original location and format. This is a fundamental change, compared to traditional schemes in which data is moved to accommodate the needs of the query engine. The research team is also developing techniques to ensure that it will not be possible to infer personal information about patients from query results while performing advance machine learning analytics.
The MIP is committed to respecting the Data Policy Manual (DPM) produced by the Data Governance Working Group of the HBP and approved by The Directorate (DIR) and the Science Infrastructure Board (SIB).